Reader Reports for Celiac Awareness Month

DSCN3606

October is Celiac Awareness Month, so there’s an uptick in coverage about the disorder and generally about gluten intolerance. A couple of the better pieces that have been published lately: “Gluten-Free: Is It for Me?” by Daphne Oz on Oprah.com and “Why Common Foods May Hurt Your Health” by Dr. Jon LaPook on The Huffington Post.

Everyone knows it’s Halloween at the end of this month, but parents of children with celiac disease and/or food allergies need to hear about the Halloween candy list that’s available from Sure Foods Living. Keep in mind that this list was compiled using American sources. Canadian parents, when you read that Smarties are free of gluten, know that this is not true of the popular Nestlé treat, but of an American candy that is unrelated but shares the name. Also this month, the National Foundation for Celiac Awareness hosts a Gluten-Free Cooking Spree in San Francisco. It will take place on October 30th; check the NFCA site for details and ticket information.

Some Gluten-Free Guidebook readers also have advice to share. Carolina, who lives in Buenos Aires, Argentina, recommends one gluten-free spot:

There is a place called CeliGourmet here in Buenos Aires that sells food to take out. It has all sorts of things, such as crepes, tarts, pizzas, sandwiches, empanadas (typical local food). There are also many kinds of cake, like cheesecake, chocolate cake, tiramisu, etc., and a variety of breads. There are two stores: one in General Paunero 1927 – Martinez (like half an hour out of town) tel, 4798-2990, and one in Thames 1633 – Palermo Soho, in town, tel 4831-5162.

To my ear, Buenos Aires sounds more and more like a gluten-free paradise. Reader Silvia Basualdo Róvere shared some local restaurants in this post and in this one. If you visit Buenos Aires, check out Oleo, a website that allows you to search for city restaurants that serve gluten-free meals (“comidas para celiacos”). There are currently 300 places on the list!

Another reader, Sybil, left an incredibly helpful comment on my post “Gluten-Free Fast Food at the Eaton Centre.” In it, she mentioned that the Druxy’s Famous Deli in Toronto’s Commerce Court kept gluten-free bread in its freezer. I’d never heard about Druxy’s offering gluten-free options, but Peter Druxerman, the company’s vice-president of marketing, confirmed it. Right now it’s just a test program — the only Druxy’s with gluten-free bread is the one in Commerce Court — but it’s one that Druxerman says the company would like to expand.

Next summer, if you’re visiting Ontario’s spectacular Stratford Festival, take a tip from another reader, Marilyn, who shared this:

We twice visited the festival last summer, and we were able to order ahead, by phone or online, for a gluten-free picnic lunch that we picked up from the Festival Theatre lunch bar. We found the food and beverage supervisor very helpful in discussing options, and the food was excellent!

If you go, the Festival Theatre Café is located at 55 Queen Street, Stratford, [tel] 1-800-567-1600 or 519-271-4040. According to the website, picnic lunches need to be ordered at least 48 hours in advance.

Many thanks to Carolina, Sybil, and Marilyn for their terrific tips. Please keep them coming!

Reporting Accurately on Celiac Disease

Some frightening headlines about celiac disease have been circulating lately. My inbox has been filling up with gems like these: “Study Finds Increased Risk of Death for Patients With Celiac Disease,” “Celiac Disease Raises Mortality Rate,” and the blunt “Celiac Disease Raises Risk of Death.” These stories aren’t coming from fringe sources or anonymous blogs. According to the Los Angeles Times,Those With Less Severe Symptoms of Celiac Disease May Be at a Higher Risk of Death.”

Talk about media hype.

These reports came out of the same study, which was published by the Journal of the American Medical Association in its September 16th issue. (Unfortunately, the study is only available online to JAMA subscribers; there is a summary from Medscape that’s available from Google’s cache). It was performed by Swedish researchers, who did a retrospective cohort study. In layman’s terms, that means they didn’t track live celiac patients. Instead, they sifted through years of medical data, from July 1969 through February 2008, about deceased persons, and correlated their data with intestinal biopsies performed on patients with celiac disease and/or intestinal inflammation.

The results showed a modest increase in the risk of mortality. Although the researchers acknowledged some limitations (for example, not all of the subjects with intestinal inflammation necessarily had celiac disease, and no adjustments were made for health issues such as smoking or obesity), its conclusions are important — but not in the way that has been widely reported.

Here’s what the headlines should have said: “Undiagnosed Celiac Disease Increases Risk of Mortality.”

What the study demonstrates is a real risk for people who have celiac disease but who have either not been diagnosed with the disorder, or who have been diagnosed but who opt not to follow a gluten-free diet. It is, if anything, an argument for encouraging people to get tested for celiac disease. But I can’t help but wonder if scary headlines will actually make people less likely to get tested. What do you think?

Dining With Conviction in Toronto

Conviction1

Last week I wrote about how I ended up at a (wonderful) Turkish tourist trap. This week, I’m fessing up about falling for a gimmick. Not just any gimmick, mind you. There’s a short list of chefs whom I admire and will follow to whatever new venture they dream up. Toronto’s Marc Thuet is on that list. I’ve dined — gluten-free — at his various restaurants over the past few years. That’s how I ended up at Conviction.

What’s the gimmick? The name provides a clue: all of the kitchen crew and serving staff at Conviction have served time in jail. The concept is so cute that there’s a reality show being filmed about the restaurant. A sign out front warns that entering the restaurant implies a willingness to appear on-camera. (In fairness, I should add that filming was going on while I was there, but the TV crew wasn’t intrusive at all.) Still, dining at a place that boasts about the illicit pasts of its staff raises a few eyebrows — and questions. My practical friend Stephanie, who suggested checking out the restaurant, texted me before we met there: “Bring cash. We are NOT paying with credit cards!”

There are a few things you can count on at any Marc Thuet restaurant. One is a charming setting; two is impressive service; and three is fine food. All three are in evidence at Conviction. The dining room is an airy white atelier enlivened by red chairs, crimson flowers, and scarlet chandeliers. Service is thoughtful and helpful; while my server didn’t seem to be familiar with celiac disease, it took only a few minutes to coordinate with the kitchen about what I could have for dinner. The food was fantastic: I started with a simple green salad made special with the addition of a well-aged sheep’s milk cheese, and then had Ontario-raised lamb with ratatouille. The menu is short, but everything on it is farm-fresh, or made from scratch on the premises.

I’ve suggested the restaurant to a few people since, and have heard only good reports. I’m gaining confidence in Conviction. The next time I dine there, I may even pay with a credit card.

Conviction [address] 609 King Street West, Toronto, Ontario, Canada [tel] 416-603-2999 [web] www.convictionrestaurant.com

*          *          *

Some fiction news: My short story “Insatiable” was published by the online journal Beat to a Pulp. BTAP’s editor, David Cranmer, interviewed me, and asked me about the Gluten-Free Guidebook, among other things. Also, my story “Beast” just took first prize in a crime fiction contest called the Watery Grave Invitational.

A Celiac-Friendly Spot in Istanbul

Blue_Mosque

I’ve written before about why I try to avoid tourist traps. When visiting a city for the first time, the last thing I want to do is to spend time in a restaurant that locals disdain. Are there tour buses lined up outside the restaurant? Then the place is not for me.

But, as it turns out, there are exceptions to the rule. One prime example: Buhara 93.

This restaurant is located around the corner from the wonderful Erguvan Hotel, where I stayed in Istanbul. Both are located in Sultanahmet, the oldest part of the ancient city, situated on the European side of the Bosphorus. This district is filled with wonders, many of which are within easy walking distance of the others: Hagia Sophia, the Blue Mosque, the Basilica Cistern, the Hippodrome. There were tour groups parading in and out of the attractions, of course, but I also noticed that buses would wait outside of Buhara 93 every night. As if that weren’t bad enough, the restaurant was mentioned in every guidebook I picked up.

Then, on the last night of my stay, my schedule ran very late. Back at my hotel, I knew I needed to grab dinner somewhere, but wasn’t sure what to do. Suddenly, the proximity of Buhara 93 seemed, if not alluring, then at least appealing.

Inside the restaurant, I had my first surprise. I handed the host my Turkish celiac card, and he exclaimed, in English, “Celiac disease! Yes, we know this!” He was familiar with the disorder, simply because, with so many tourists from various countries coming through, he and the rest of the restaurant’s staff had encountered it many times before. He was able to point out to me what would be celiac-safe on the menu. There weren’t many choices, but the tomato salad and lamb kebabs I had were delicious. Buhara 93 doesn’t serve alcohol, but they do offer fresh-squeezed juices, including a pomegranate drink I wished I could take home with me.

I had a great meal, but also an important lesson: sometimes it pays to check out spots that specialize in the tourist trade. Lesson learned.

Buhara 93 [address] Nakilbent Sok. 15A (just outside the Hippodrome), Istanbul, Turkey [tel] 0212-518-1511

A Celebratory Gluten-Free Lunch In New York

HD_garden

I know that most people come to the Gluten-Free Guidebook for restaurant and travel information, but I have some other news to share. Late this summer, my agent sold my first novel to an editor at Forge, a division of St. Martin’s Press. My debut crime novel, The Damage Done, will be published in October 2010, and it’s the first offering in a two-book deal. I can’t tell you how excited I am about this news. I’ve been writing crime fiction for publications such as Thuglit, Beat to a Pulp, Crimespree, and The Rose & Thorn for the past few years, and a couple of my short stories have been picked up by anthologies, but publishing a novel is pretty much the dream I’ve had for most of my life. (If you’d like to read a bit more about The Damage Done, I discuss it in an interview with David Cranmer, the editor of Beat to a Pulp.)

My new editor really impressed me in our first e-mail exchange. He’d visited the Gluten-Free Guidebook, and came up with a celiac-friendly list of possible places for our celebratory lunch. We ended up at Tamarind, an elegant Indian restaurant that’s a short walk from the Flatiron Building, where the offices of St. Martin’s Press are located. Its main dining room is a stunner, with a skylight in the center of the ceiling. There are statuettes from India and bouquets of flowers in alcoves, and semi-private banquette booths bookending the space.

Beautiful as Tamarind’s setting is, the best feature is its food. Not everything on the menu is gluten-free, but the staff was very helpful in figuring out what would be safe for me. I started with seared scallops in a coconut-mint sauce and grilled lamb on skewers, then moved on to a traditional chicken tikka masala and goat in a cardamom sauce. (My very thoughtful editor was kind enough to go gluten-free for lunch, so we were able to share our dishes.) Chick-pea flour is the starch of choice for many of the items on the menu, though wheat flour is employed in some dishes (and, of course, in the long list of naans). I was too full by the end of lunch to contemplate dessert, but I noticed that there were quite a few gluten-free choices on that menu, too, like the caramelized basmati rice pudding that I’m definitely going back to try.

Tamarind [address] 41-43 East 22nd Street, New York, NY 10010 [tel] 212-674-7400 [web] www.tamarinde22.com

Reader Reports: Gluten-Free Paris and More

dscn0975

I often get questions from readers looking for recommendations about where to dine gluten-free in destinations that I haven’t visited (or, at least, haven’t visited since being diagnosed with celiac disease). I make the same suggestion to all of them, which is to check out the Gluten-Free Guidebook Group on Facebook. The great thing about this group is that it has a discussion board where people can ask questions and share recommendations. I’ve been impressed by how helpful people are, and I’m grateful to everyone who has contributed their time to the group.

One popular destination that people often ask about is Paris, a place I haven’t visited in the past five years. Fortunately, reader Ellen Maycock has, and she shared her very helpful suggestions with the Facebook group. She was enthusiastic about one Parisian restaurant in particular:

I’m just back from Paris. I highly recommend a totally GF restaurant, in Montmartre! It is Des Si et des Mets, located at 63, rue Lepic in the 18th. Metro stops Abesses or Blanche, phone 01.42.55.19.61. I had two excellent meals there. What a treat to be able to order *anything* from the menu! Our waitress one evening said she was a celiac. I don’t know if they speak English, but they were extremely friendly. (You might want to bring a small dictionary to translate the menu.) The *entire* restaurant is gluten-free, so you don’t need to worry about cross-contamination. The prices are moderate for Paris — you can get a very nice 3-course meal for 26 euros.

Ellen also had some helpful general recommendations for celiacs who visit Paris:

If you have any cooking facilities, you’ll be in good shape. There’s a great organic market every Sunday morning on the Blvd. Raspail. I found GF items in the Monoprix (major grocery chain), and in some health food stores. I was told about good bread in Naturalia, but didn’t try any.

I was anxious about dealing with GF in Paris — my first trip there after my diagnosis in January — but I felt very well (better than in the States).

Other readers have written recently to share their gluten-free discoveries. One couple, Lynne and Ernie, passed along a terrific recommendation for the Niagara region:

Cafe Amore (211 Martindale Road in St. Catharines, Ontario) is our favorite restaurant. They have rice pasta and all the sauces are gluten-free. They have gluten-free desserts and amazing dinner rolls. They are all very aware of cross-contamination issues and are more than helpful when it comes to ordering a safe gluten-free meal. This is a place that is worth spending time at while visiting the Niagara area.

Another reader, Nadine, wrote to share a couple of discoveries she’d made:

I have a recommendation for a restaurant in La Jolla, California: George’s at the Cove. I had a fish taco that was out of this world delicious. It was one of the restaurant’s specialties and my server told me it was gluten-free. Also, there is a bakery in the small town of Bristol, New Hampshire: Cornucopia Catering and Bakery. It bakes gluten-free breads and pastries. It’s the only bakery for miles and their products are worth the trip. I’ve had their cinnamon buns and a pecan bread, which were fantastic.

One more recommendation came from my friend Danyael Halprin, a journalist who lives in Calgary. She told me about a dedicated gluten-free restaurant called A Tasty Menu. Its offerings include plenty for vegans and vegetarians, and the lactose intolerant. There’s also a special menu for kids.

A heartfelt thank you to everyone who has contributed suggestions and recommendations. Please keep them coming!

A Dedicated Gluten-Free Ontario Bakery

dscn2375

A while back, I wrote about the impressive array of gluten-free groceries at the Specialty Food Shop at Toronto’s Hospital for Sick Children. The store isn’t just for celiacs, and not all of its products are gluten-free. But located in its aisles are gluten-free North American brands such as Glutino, Mi-Del, Enjoy Life, and Kinnikinnick, and international ones such as Australia’s Orgran and Germany’s Glutano. There are plenty of treats — cookies of all descriptions, ice-cream cones, snack bars — as well as healthier fare, including pastas, cereals, breads, soup bases and mixes, baking products, and frozen dinners.

The Specialty Food Shop introduced me to a Canadian bakery that I’d never heard of before, but a taste of El Peto‘s unbelievably delicious butter tarts made me want to get to know them better. Founded in 1988, the company is a Swiss-style bakery and a dedicated gluten-free facility. Since El Peto is located in Cambridge, Ontario — about an hour’s drive west of Toronto, close to the charming theater town of Stratford — I decided to visit the last time I was in the area.

El Peto is “free” of so many ingredients, I started to wonder what they do bake with. It’s not only entirely wheat-free and gluten-free, it also offers corn-free, yeast-free, milk-free, egg-free, peanut-free and trans fat-free foods. Their product range includes breads and pizza crusts, muffins and pies, hot and cold cereals, cake mixes and cookies, and their own milled flours, made with ingredients such as romano beans, chickpeas, quinoa, potato, and brown rice. Their company store also stocks gluten-free products from other manufacturers, such as pastas from Tinkyada and Gogo Quinoa (a Bolivian fair-trade company), waffle ice-cream cones and wafers from Barkat, and soup cubes from Celifibr.

Then there are, of course, El Peto’s wonderful butter tarts. It turns out that other types of tarts are also available — pecan, lemon, raspberry — and that there are unfilled tart shells, too. El Peto’s prices are reasonable, but the best news is that you don’t need to visit to shop there. You can order via the online store. El Peto’s products are also turning up more frequently in mainstream grocery stores — those butter tarts can now be found at the Loblaws Superstore in Toronto, along with breads, rolls, and mixes.

El Peto [address] 65 Saltsman Drive, Cambridge, Ontario [tel] 800-387-4064 or 519-650-4614 [fax] 519-650-5692 [web] www.elpeto.com

Dining at the Royal Ontario Museum’s C5

rom_crystal

I have mixed feelings about the Royal Ontario Museum‘s redesigned building. From Bloor Street West, Daniel Libeskind’s crystal is aggressively fabulous. It’s an übermodern work of jutting glass and steel, and you can’t miss it, even from a mile away. The interior of the crystal is another story. In spite of its towering ceilings, it lacks the grandeur of the façade and resembles a whitewashed warehouse. This is not to say that the collections aren’t breathtaking. I particularly love the Chinese galleries, which feature an intact Ming tomb as well as the Bishop White Gallery of Chinese Temple Art. The ROM also has wonderful galleries devoted to ancient Egypt and Greece, and its perennially popular dinosaur collection. But the building is disappointing on the inside.

The exception is C5, the Royal Ontario Museum’s beautiful restaurant, which is located on the crystal’s top level. Here the skylights and criss-crossing window segments provide a gorgeous view of the city. The dining room is modern chic: white leather banquettes and chairs for dining, black leather sofas and wing chairs for drinks, and an open kitchen that knows how to pair flavors for maximum impact. This is where I had my most memorable meal on my last visit to Toronto: fresh cod, grilled to perfection and served with a lentil-and-vegetable salad and a tangy mustard sauce. The menu is short, but everything on it is prepared from scratch, and the staff is familiar with celiac disease and food allergies.

Keep in mind, if you visit, that you don’t need to pay admission to the museum to dine here (though I strongly recommend that you visit the collections). Just tell the staff that you’re going to C5, and they’ll point you to an elevator that will whisk you upstairs.

C5 at the Royal Ontario Museum [address] 100 Queen’s Park (at Bloor Street West), Toronto [tel] 416-586-7928 [web] www.C5restaurant.ca

Roundup: Gluten-Free Summer

lake_boats

I’m always grateful when the Gluten-Free Guidebook gets coverage in the media, and so it was a thrill when the site got a mention in the July issue of the JourneyWoman newsletter. If you travel solo, for work or for pleasure, JourneyWoman is an amazing resource (and while some of its tips are certainly geared towards women, many apply to men, too; just sign up on the site to receive the free newsletter via e-mail).

I heard from several people as a result of JourneyWoman’s coverage, and wanted to mention a tip I got from Barbara Collins, who had a fantastic experience with Holland America:

I read about your site in JourneyWoman Newsletter.  I recently got back from a cruise to Alaska with the Holland America cruise line.  When I signed up for the cruise, they had the possibility to indicate special dietary needs.  In fact, I am not celiac, but do have a severe allergy to wheat and a lesser intolerance for gluten.  But I am even more complicated in that I am also allergic to dairy and eggs.

Holland America took this very seriously and every day gave me the menu for the following day from which I made my choices.  They then prepared that menu specially for me not including any of the ingredients to which I was allergic or intolerant.  In fact, I was surprised one evening when I ordered something Asian and my dining partner had the same thing, but hers had a drizzle of soy sauce and mine didn’t.  It was then that I found out that soy sauce contains wheat!

They had quite a good selection of gluten free products as well (bread, muffins, pancakes, etc.). I would definitely recommend this cruise line for anyone with any special dietary needs.

In other news, GF Patisserie, which I’ve written about before, turns one this month. I haven’t had the chance to visit this dedicated gluten-free bakery in Cochrane, Alberta, but I’ve heard only wonderful things about it. If you happen to be in the area (it’s a short drive from Calgary), you’re invited to the bakery on Saturday, August 8th for some celiac-safe birthday cake with founder Victoria Edlinger and her husband, Peter (who writes the Celiac Husband blog).

If you’re in Los Angeles, you might want to check out the SunPower Natural Cafe in Studio City. It’s an organic, vegan raw-food restaurant where all of the desserts are gluten-free, including the tiramisu, cookies, and the “un-cheesecake.” And if you’re near Hackettstown, New Jersey, stop by the Donaldson Farms roadside stand, which my friend Charlie just told me about. The stand is open daily from 8am to 6pm from May 1st to November 26th, and its offerings include fresh fruit, fresh-cut flowers, and fresh-baked gluten-free treats.

Do you have a favorite spot that I should include on the Gluten-Free Guidebook? Please let me know about it.

Smart Businesses Support Celiacs

dscn1971

Back in May, I was excited when Starbucks introduced its first-ever gluten-free baked treat, the Orange Valencia Cake. But last week, the company announced — via Twitter — that it was no longer going to carry it. Instead, gluten-intolerant people would have to make do with KIND bars, one of those fruit-and-nut snacks which, in my opinion, are neither healthy enough to justify as part of a meal nor decadent enough to qualify as a treat.

To me, it was a great disappointment. It wasn’t that I was in love with the cake. I’d been in several Starbucks locations where the cake had been taken out of its packaging and set on a cake stand in the display case, alongside the wheat-based baked goods, entirely defeating the point of it being gluten-free. But I was surprised that such a major US chain would go to the trouble of developing the treat, stocking it nationally, then just ditch it within weeks. I’m not sure what Starbucks’ message to the growing number of gluten-free consumers was supposed to be, but it certainly wasn’t that they were committed to serving us.

Triumph Dining has organized an online petition to Starbucks, designed to get the company to bring back the cake. Personally, I’m choosing to focus on shopping at places that have consistently shown an interest in serving celiacs. The recession has made me more conscious about where I spend my money. With the growing number of empty storefronts in New York City, I want to support new businesses like HealthSmart of NY, which opened in Murray Hill a couple of weeks ago and which boasts a surprisingly huge gluten-free section for a relatively small store. I also like to buy my groceries at local stores like Natural Green Market and Fairway, or national chains like Trader Joe’s and Whole Foods, all of which have demonstrated a longstanding commitment to the celiac community.

My feelings about supporting businesses that serve celiacs extends to bakeries — such as Babycakes and Shabtai Gourmet — and especially to restaurants. When I’ve gone out lately, it’s mostly been to spots such as Bistango, Risotteria, GustOrganics, and Rosa Mexicano, all places with an impressive record of serving celiacs. (Rosa Mexicano doesn’t have a gluten-free menu, but over the course of many visits I’ve found them to be very celiac-aware.)

At a time when we’re all watching our budgets, I’d like to make a case for spending even more carefully. If a major corporation like Starbucks isn’t serious about serving the gluten-intolerant, I see no reason to support them. As Ethan at Gluten-Free Maps pointed out to me last week, Starbucks offers a gluten-free fair trade chocolate cake at its outlets in Great Britain. And this isn’t just about Starbucks; as Chris at Celiac Handbook has noted, McDonald’s restaurants in Finland have a gluten-free menu (as do the ones in Sweden). If these American-based companies can manage these feats overseas, they can do it here. No excuses.